Resources

Indigenous consent, control, knowledge and capacity-building

NCIG designs grassroots foundation-building programs and resources that educate and empower Indigenous communities in genomic medicine.

About

As part of this work, our Centre has a growing social research program that explores how Indigenous peoples think and feel about genomics and its potential outcomes. This research is not done about communities, but with communities. By working in partnership, we co-design and conduct projects that reflect community priorities and explore both the opportunities and challenges of genomics.

Our program includes qualitative, quantitative, and mixed-methods projects, allowing us to capture both the depth of personal experiences and the breadth of community perspectives.

Our aim is to highlight the benefits of genomics research while also carefully considering the cultural, ethical, legal, and social dimensions.

This approach ensures that Indigenous voices guide how genomics is understood, communicated, and applied in Australia.

Projects

Partnering with Gurriny Yealamucka, the LINEAGE Study explores Indigenous views on genomic data storage and security, fostering two-way learning to build trust and guide best practices.

Exploring Indigenous perspectives on genomics in NT and Yarrabah with community partners to guide respectful, community-informed research and data sharing through the CONNECT program.